The tightness is better and I don't notice it ALL the time like I used to… mainly at the end of the day is when I notice it most. A lot of people ask me if it is numb.. and it has never been numb… I have complete feeling, it is just that when my brain tells my face to work, certain parts can't respond.. and that is what I do feel. I can tell my brain is trying to make connections, just those connections aren't happening!! I still have the synkinesis - my eye and mouth connection isn't fun and I notice that at ALL times too. I can't chew food on the right side of my mouth or my whole face goes haywire.. it's actually kind of funny to watch. Ellie is blowing raspberries a lot so I do it back to her.. but for some reason the mouth motion to do it completely closes my eye - which again is pretty funny. Trying to get Ellie to say "ma ma" makes my eye close too - still no whistling or puckering or balloon blowing either. Certain cups/bottles etc are still really hard to drink out of.
My bright spot has been this past month's sermon series….it was about our dreams/goals. How we all start our dreams and goals off with great intentions/working hard/asking God to help us…. but then sometimes our own selfish ambition/jealousy etc. gets us off track and then we lose sight of what is really important. One of the things I love about church is that the message is given to everyone.. and we all translate it to our lives in our own ways…. For some reason I started thinking about my dream. Initially it was to be a great teacher.. and I do think that I was a good teacher (and I miss it a lot)… but then my goal/dream changed and I wanted to stay home with my kids and be a great mom/wife…. and I also think I achieved that in Maree's first year of life. Unfortunately, I was thrown a curve ball with this Bell's Palsy… and I now realize it has totally taken me off track of my goal/dream. I've kind of let it consume me. I'm jealous of EVERYONE's smile - in fact, back in November, everyone on Facebook seemed to be posting what they were thankful for….but I had to stay off of it, because I could hardly handle reading people's thankful posts for "caffeine, manicures, chapstick etc."-- it would make me angry and/or sad, because I was struggling to blink, eat, smile, talk, laugh etc… things that I will never take for granted again. After that sermon though, I realized all of these thoughts have totally taken me off course from my dream/goal because I've been so fixated/jealous/angry/and most of all sad about this happening to me… and as a result… I do not think I've been the same mom that I once was. BUT, I'm so glad I had this realization because I'm back on track and have a whole new perspective and I can already tell I'm being a better/more positive mom :)
| I know this is a decent picture… but I really, really miss my smile. My eye doesn't "twinkle" when I smile anymore either |
| And oddly enough… I have about 1 day a week that my face looks more "normal"… but then it regresses. It also helps to tilt my head! |
Hi sweetie--your honesty is so refreshing. I truly can't imagine how hard these last 10 months have been but I know your faith is strong and there are so many people who love you and are praying for you. You are a wonderful mom and are a stunning, beautiful girl! Love and hugs to you from the Weedins!
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